Mystery Intestinal Illness, How I Recovered, and What I Learned

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A lot of this is going to be anecdotal and unscientific, since a lot of this was trial and error. I am not a doctor and some of the things I tried were probably potentially unhealthy or dangerous. Maybe it will help someone or at least be an interesting read. I didn't go on too much about it in my intro since I didn't think there would be interest, but RawDeal mentioned it would be worth writing about so here's my story.


Warning: Detailed Talk About Bowel Movements Incoming


I started having minor digestive issues, like a more of an urgency/emergency to go first thing in the morning more than usual. I wrote it off to eating more fiber, I was doing a ton of green shakes at the time. Didn't think much of it. Fast forward a few month later, I ate out at a restaurant and landed what I thought was food poisoning. Woke up shitting my brains out for the entire day. I felt like shit but I said hey, I've been here before. It'll pass.

Except it didn't.

This went on for nearly 2 months. That's how long the wait time is for a gastro specialist in this area. My GP was no help. He ran regular blood panels, told me I was fine and that it was probably stress. Yeah, right.

Symptoms during this time: Constant diarrhea. I mean 15-20+ times a day, regardless of what I ate. If I didn't eat, straight water would be coming out. Rapid weight loss, over 60lbs. In my previous intro I mentioned I dropped from almost 240 to 179, but checking my notes it was actually 173. I'm 6'4" so I looked like I was dying. Everything I ate came out completely undigested. Literally exactly the same way I swallowed a piece of food is how it would come out. If this kept up, I was going to die if that kept up. Also constant sharp pains and cramps in the intestines and lots of gurgling noises.

Finally saw the most unhelpful gastro in the world. Ran more extensive bloodwork and a stool sample, ruled out any kind of infection like C Diff or Giardia. Scheduled a colonoscopy which came up totally normal. His advice was "Try some probiotics or something, I don't know. You're fine. Maybe its IBS." Well I did just that, and every single strain of probiotic I tried made the symptoms more severe. I refused to accept IBS as a diagnosis, because IBS is actually a lack of a diagnosis. It's the medical term for "we don't know what's wrong, but your gut is ****ed up and you have some similar symptoms to other people with ****ed up guts."

I did some research and thought I might have SIBO or SIFO, which is Small Intestine Bacterial/Fungal Overgrowth. Basically the bacteria in your large intestine can creep into the small intestine and wreak havoc, or sometimes its an opportunistic bacteria or yeast that can take over the healthy small intestinal flora. I tried multiple medications and supplements for this, including an antibiotic called Xifaxan that insurance wouldn't cover. At that time it was $2500 for a course, with negative results. I have no confirmation that this is what I had, it was just a suspicion.

Not to sound like a pussy, but I guess I am, because this was the only time in my life I seriously contemplated and came up with a plan for suicide that I would carry out if all of my healing efforts failed. That's how horrible I was feeling and I don't know how I managed to even get out of bed every day.

I tried two things finally that helped: some herbal products and antibiotics that actually gave me some improvement, and slightly increasing my TRT dose. Not a cure but it made it manageable. I was able to eat and digest enough to put weight on and I would still have diarrhea in the mornings a few times when I woke up but it didn't hit me often during the day anymore. The products were oregano oil capsules 3 times per day, and berberine capsules 3 times per day. These are herbal antibiotics with some anti inflammatory and other benefits. Also I believe increasing the testosterone was anti-inflammatory to some extent.

However I was still feeling sick, and sub optimal. I had nothing left to lose, and this was around the time that the keto and carnivore trends were really taking off. People were reporting complete remission of autoimmune diseases, etc. Now let me preface this by saying I am NOT a carnivore zealot. I'm just going to share my honest experience with it. I started keto for a few weeks, then went right to carnivore. Red meat and salt only 2 - 3 times a day, only drinking water (and coffee once in the morning). Dropped all supplements.

During the transition period my symptoms got worse for a week, which I was told to expect when making such a drastic diet change. By the second week, ALL of my digestive symptoms were disappearing. After a month I had no symptoms. At all. I started adding other carnivore friendly foods in slowly. Eggs first, then bacon, then cheese, chicken, fish, etc. My symptoms disappeared completely. I took my first solid shit in almost a year. I even made sure I was only using butter or animal fat to cook in. I was convinced at the time that any non-animal based foods were the problem. In retrospect, they may have been triggering symptoms for me even if they weren't the root cause since they are tougher to digest.

I believe this diet worked for a few reasons. One, a lot of plant foods, especially fiber rich foods, can cause gut inflammation. In most people this is a minimal amount and can actually have a beneficial hormetic effect, but if one has an already compromised gut it could be too much for the body to handle. Despite common misconceptions, meats are incredibly easy to digest and are usually liquified by the time they reach the small intestine. They are almost entirely absorbed and produced very little waste.

Two, if there were any nasty bacteria or yeasts that fed on sugar/carbohydrates, no doubt this diet starved them out. My average carb intake during this time was under 10 grams per day. It's also very high in protein which no doubt helped the healing process. My gut definitely needed a break from tough digestion to heal myself.

Three, it is a ketogenic diet, and keto diets produce high amounts of the ketone beta hydroxybutyrate, which is also very highly anti-inflammatory. This no doubt helped contribute to a healing effect while my gut rested and recovered and helped some of the inflammation in my body.

I followed this diet for probably longer than I needed to, close to two years. Now there are definitely some downsides to it as well. Its extremely, extremely restrictive. Social dining is always a headache. It's expensive to eat fatty cuts of red meat all the time unless you love ground beef (which trust me, gets old fast). There is a potential for nutrient deficiencies. Hardcore carnivore people will say that's not true, the RDAs are wrong, you can just eat liver, etc. But I had low vitamin C and D levels after a while, and my thyroid began to slow down. This is normal when you restrict carbohydrates for too long. Gym performance will suffer. Your endurance will go up, but you lose explosive ability, and anaerobic exercise capacity. I was able to get stronger but nowhere near back to where I was when eating carbohydrates. Any diet that's too restrictive (vegan/vegetarian, carnivore, etc.) will lead to suboptimal function on some level in most people. They are effective tools, but probably not lifelong eating strategies.

I slowly started introducing carbs, mostly by accident. My girlfriend loves to cook and bake and made homemade bread. Fresh bread is probably my favorite carb. She made it all the time, but one day the smell was just to much and I said **** it. In the past I would have been shitting my brains out. I was waiting for the inevitable...and nothing happened. I was fine. I was still convinced "no, you have to stay carnivore. You have to stay keto. It cured you." So I barely ate carbs for a while, but I enjoyed them. Nothing bad happened. Finally I went to Europe on vacation. My very first day in France I was sitting in a French restaurant and I told myself "**** it. You didn't come to one of the greatest culinary countries on Earth to eat nothing but steak." I enjoyed my time in Europe eating whatever I wanted, came home and kept slowly introducing foods until I found what worked for me and what didn't.

There are only a few foods that trigger any sort of issue for me now, but they are nowhere near how I was feeling. I have to limit vegetables, especially green vegetables, they just cause a little gas or loose stools for me the next day, but I still have them occasionally. Also for some reason oatmeal can cause these symptoms for me. Can't go overboard on nuts but I can have a few handfuls. But every day now I'm eating eggs, bread, rice, sweet potato, pasta, fruit, berries, steak, chicken, fish, pork, cheese, protein powder, basically whatever I want. I started introducing some supplements. I take a multi, extra C and D, fish oil, and magnesium.

All is well in the world now except I have no ****ing libido whatsoever on TRT despite having great lab numbers. This was an issue long before my digestive issues so I don't think it's related. Hopefully I can figure out that issue next.

I am sure there is more I could elaborate on, or plenty of questions I can answer, so ask away. Also welcoming criticisms or people challenging my way of thinking as well. Hope this was able to help someone or was at least an interesting read. Happy thanksgiving everyone.
 
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Thanks for sharing. I have periodically dealt with IBS type issues. It is pretty manageable for the most part with immodium and Align probiotic, but I am starting to have issues again when my calorie intake gets super high like 4200+.
 

DOOM

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I really wouldn’t categorize a vegetarian diet as being too restrictive.

I mean being able to eat any food on the planet that doesn’t have animal flesh in it leaves quite a bit of wiggle room!

I agree Vegan, Carnivore, and Ketogenic diets are very restrictive. IMO all three of these examples are actually unhealthy!
 

rawdeal

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Thank you, Koalocelot. You discovered, and became a poster child for, a common theory around here ... that at least some doctors ain't worth a shit, so to speak. Not going for a joke here, but one of my dogs suddenly decided he had life-threatening IBS. The Veterinary Internist who made several car payments off us did a bunch of things, but her scripting him for Prednisone had the most immediate effect. I am surprised none of your collection of doctors tried that. Granted it is treating a symptom rather than a condition, but it was quick relief and improved health for the patient. Eventually it was decided he had pancreatitis, for which he has a special diet now as we wean him off Prednisone at her advice.

Seemingly your case resembles my dog's in that he waited 8yrs to develop his version of what you had, and your Intro mentioned it took you 30 or so yrs. I'm guessing his DVM and your MD's couldn't begin to explain wtf with that delayed (much delayed) onset. Answers to that might provide better insight into the whole problem/solution stuff.

Who, or what, was it that led you to try oregano oil and berberine, followed by a keto diet? I wonder too if keto was what you needed, why then did reintroducing other things not punish you? You describe a methodical approach, but France and a few other times may have seen a more "fukk it, what have I got to lose?" attitude. Maybe your earlier extreme inflammation was fixed with the keto so that only minor inflammation occurs on the new restricted diet(?)

Thanks for the time you invested here .............. and hang on to that girl :)
 

rawdeal

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I really wouldn’t categorize a vegetarian diet as being too restrictive.

I mean being able to eat any food on the planet that doesn’t have animal flesh in it leaves quite a bit of wiggle room!

I agree Vegan, Carnivore, and Ketogenic diets are very restrictive. IMO all three of these examples are actually unhealthy!

IMO, you are right for the vast majority of people. In the OP's case, in the absence of any other evidence, it was a cure for a miserable and possibly life-threatening condition. It may still be a less than ideal solution in the long run, but at least he'll have a better quality, and quantity, of life as he perfects his plan.
 
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I don't understand why medicine has come so far, and we are still stuck in the dark ages when it comes to gastro intestinal issues.

We're just guessing it seems like, when it comes to troubleshooting this stuff.
 

rawdeal

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I don't understand why medicine has come so far, and we are still stuck in the dark ages when it comes to gastro intestinal issues.

We're just guessing it seems like, when it comes to troubleshooting this stuff.

Maybe all the good specialties get taken by the top med school graduates, and gastroenterology is left for the others.
 
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I really wouldn’t categorize a vegetarian diet as being too restrictive.

I mean being able to eat any food on the planet that doesn’t have animal flesh in it leaves quite a bit of wiggle room!

I agree Vegan, Carnivore, and Ketogenic diets are very restrictive. IMO all three of these examples are actually unhealthy!

I think it depends on the person and how they run their vegetarian diet. I agree that someone who is on point with their nutrition, supplementing properly, and eating the proper variety on foods would do just fine vegetarian (assuming it agrees with their physiology). Someone in the health or fitness space is much more likely to be on top of it. The vast majority of vegetarians do not do this, they just assume all foods are "safe" if they don't contain meat, and don't properly track their potential vitamin, mineral, or amino acid deficiencies that can arise from a poorly balanced vegetarian diet. It isn't inherently bad, or good, but by definition it is restrictive since you're eliminating a massive food group with extreme nutrient density and bioavailability.

I also agree that any of those diets (vegan, carnivore, etc.) for too long are going to inevitably lead to issues. For me it was a great tool for healing, but I think its suboptimal as a long term diet for sure!

Thank you, Koalocelot. You discovered, and became a poster child for, a common theory around here ... that at least some doctors ain't worth a shit, so to speak. Not going for a joke here, but one of my dogs suddenly decided he had life-threatening IBS. The Veterinary Internist who made several car payments off us did a bunch of things, but her scripting him for Prednisone had the most immediate effect. I am surprised none of your collection of doctors tried that. Granted it is treating a symptom rather than a condition, but it was quick relief and improved health for the patient. Eventually it was decided he had pancreatitis, for which he has a special diet now as we wean him off Prednisone at her advice.

Seemingly your case resembles my dog's in that he waited 8yrs to develop his version of what you had, and your Intro mentioned it took you 30 or so yrs. I'm guessing his DVM and your MD's couldn't begin to explain wtf with that delayed (much delayed) onset. Answers to that might provide better insight into the whole problem/solution stuff.

Who, or what, was it that led you to try oregano oil and berberine, followed by a keto diet? I wonder too if keto was what you needed, why then did reintroducing other things not punish you? You describe a methodical approach, but France and a few other times may have seen a more "fukk it, what have I got to lose?" attitude. Maybe your earlier extreme inflammation was fixed with the keto so that only minor inflammation occurs on the new restricted diet(?)

Thanks for the time you invested here .............. and hang on to that girl :)

Glad you figured out what was going on with your dog. I think that whatever acute issue was going on would have never resolved, or would have taken an extremely long time, if my gut didn't have a break from the hard to digest foods. I think because I spent so long on a ketogenic animal based diet with very easily digestible food that by the time I introduced "problem" foods, my gut had recovered mostly to the level of a person without issues, where I'd have whatever the normal inflammatory response is. I did some reading online that oregano oil and berberine acted as potent broad spectrum herbal antibiotics, and I use them along with my theory at the time that it may be a bacterial issue in the gut.
 

DOOM

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I still disagree! You may have a point as far a bioavailability goes. But technically a complete protein is when all 9 essential amino acids are present. The three big vegetarian ones are eggs, dairy and soy.

It’s very simple to combine two incomplete proteins to form a complete protein. So to reiterate rice and beans or a peanut butter sandwich is just as complete as a steak. Though the bioavailability may differ.

I have been animal flesh free for 10 years!
 
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I still disagree! You may have a point as far a bioavailability goes. But technically a complete protein is when all 9 essential amino acids are present. The three big vegetarian ones are eggs, dairy and soy.

It’s very simple to combine two incomplete proteins to form a complete protein. So to reiterate rice and beans or a peanut butter sandwich is just as complete as a steak. Though the bioavailability may differ.

I have been animal flesh free for 10 years!

I'm glad you found something that works for you. You seem to be approaching it correctly. Being that you're obviously on top of your nutrition, as I mentioned, makes you very different than the average American eating a vegetarian diet. My girlfriend is a dietitian working in a medical practice, and nearly all of her vegetarian patients come in with some form of nutrient or vitamin deficiency, and are below the normal range in certain amino acids when a plasma amino acid panel is run unless they have a very egg and dairy heavy diet. Bioavailability and lack of variety is a big part of this. You also run into the issue of antinutrients which are found almost exclusively in plant foods, which can have a major effect. They are able to correct these issues most of the time without adding animal flesh, although it certainly makes their job easier if they do.

As I mentioned, it all comes down to how the vegetarian runs their diet: some include eggs and dairy, some include them occasionally but not in sufficient amounts, some include one or the other, and some neither. Some outliers can do absolutely great on vegetarian. But by it's very definition, it is a diet that excludes a major food group, which makes it restrictive. I'm not anti-vegetarian, so its not an attack on the diet, its just the nature of the beast. It certainly doesn't address any ethical concerns that a vegetarian might have either.
 

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I was just speed reading thru but I have diarrhea 28 days a month and the Dr.s have no clue..so I'm going to re-read everything and possibly PM you later..thanks for the post..
 
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I was just speed reading thru but I have diarrhea 28 days a month and the Dr.s have no clue..so I'm going to re-read everything and possibly PM you later..thanks for the post..

Feel free, I'd be glad to help if I can.
 

DOOM

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I'm glad you found something that works for you. You seem to be approaching it correctly. Being that you're obviously on top of your nutrition, as I mentioned, makes you very different than the average American eating a vegetarian diet. My girlfriend is a dietitian working in a medical practice, and nearly all of her vegetarian patients come in with some form of nutrient or vitamin deficiency, and are below the normal range in certain amino acids when a plasma amino acid panel is run unless they have a very egg and dairy heavy diet. Bioavailability and lack of variety is a big part of this. You also run into the issue of antinutrients which are found almost exclusively in plant foods, which can have a major effect. They are able to correct these issues most of the time without adding animal flesh, although it certainly makes their job easier if they do.

As I mentioned, it all comes down to how the vegetarian runs their diet: some include eggs and dairy, some include them occasionally but not in sufficient amounts, some include one or the other, and some neither. Some outliers can do absolutely great on vegetarian. But by it's very definition, it is a diet that excludes a major food group, which makes it restrictive. I'm not anti-vegetarian, so its not an attack on the diet, its just the nature of the beast. It certainly doesn't address any ethical concerns that a vegetarian might have either.

No man I appreciate hearing your feedback as well. I don’t take it as a attack on the diet. I was a sous chef for over 10 years at some pretty bad ass restaurants.

As odd as it might sound, I’m a foodie! I’ve traveled quite extensively eating as much weird stuff as I can.

I pretty much ate everything you could imagine for 37 years. I’m not a preachy vegetarian.

As far as the IBS, it might helpful experimenting with a Ayurvedic approach.
 
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No man I appreciate hearing your feedback as well. I don’t take it as a attack on the diet. I was a sous chef for over 10 years at some pretty bad ass restaurants.

As odd as it might sound, I’m a foodie! I’ve traveled quite extensively eating as much weird stuff as I can.

I pretty much ate everything you could imagine for 37 years. I’m not a preachy vegetarian.

As far as the IBS, it might helpful experimenting with a Ayurvedic approach.

Thanks for the link. I'm curious what led you to vegetarianism? I tried it for a year and a half when I was younger and it wasn't for me, my energy levels just weren't as sustainable, but I am always interested in hearing people's reasons and individual experiences. Was it more for ethical reasons, health, just what worked for you? I'm a major foodie as well so you can imagine I'm super excited to be back to a point where I can eat almost anything!
 

Miamiking

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I have had MAJOR gut issues, surgery and still to this day never got answers. I have learned ALOT about health, still much to learn but now I know much of what we are told and taught by western medicine is wrong or miseleading. I listened to this guy on an interview on a radio show online and think everyone should hear the interview and check out his book, I am in no way affiliated with this guy or anything, but I know he is speaking facts because I have been there. He specifically talks about the gut, here is his book:

It's called TImebomb! A Genocide of Deadly Processed Foods

https://www.amazon.com/Timebomb-Genocide-Processed-National-Pervasive/dp/1948014017
 
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I contracted c diff this past summer...I was first diagnosed with cellulitis on my thigh...I was prescribed clindamycin as an antibiotic...within 3 days the c diff started...it took two 10 day rounds of different antibiotics to fix my c diff,...in all I started getting sick on June 15 and I was not right until September 15...I lost 15 pounds in the first few weeks...I was extremely dehydrated which one day lead me to dumping a bar while squatting due to a hamstring strain.......bro I feel your pain...I would need to use the toilet 5 times in the first few hours of waking...I would crap another 10 times during the day,......lesson learned--- never take CLINDAMYCIN ever again!!!!!!
 
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